BluebellsMcGee
BluebellsMcGee OP t1_jc1ppce wrote
Reply to comment by blueberrybaby00 in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
I’m not, and I’m not sure why! It could be because my hormone receptors were “just barely positive.” That’s a good question for me to ask my doc!
BluebellsMcGee OP t1_jc1nno9 wrote
Reply to comment by IdealIdeas in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
Triple-positive breast cancer is a type of breast cancer. It has cancer cells that test positive for the following three features:
(1) estrogen receptors (2) progesterone receptors (3) a larger amount of human epidermal growth factor receptor-2 (HER2) protein
Triple positive breast cancer is very aggressive, but because we know three things helping it to grow, we have more weapons available to prohibit its growth.
BluebellsMcGee OP t1_jc1neb1 wrote
Reply to comment by thescottch in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
DM me. I have a template I can share, or if you’re not techy I can help you make one.
BluebellsMcGee OP t1_jc01bgw wrote
Reply to comment by Ralwus in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
I was not looking for criticism, but I also wasn’t “just wanting upvotes.” I shared it because it has been helpful to my loved ones to see my treatment plan visualized, and it other patients who have seen it have expressed how helpful it was for them when trying to understand which treatments to expect. I hoped that it would be helpful to others by sharing it in a more public space, and based on the comments and DMs I’ve received, others have found it genuinely helpful.
I am baffled that anyone thinks someone going through cancer treatment is IN ANY WAY motivated by fake internet points. I hope you never experience a life threatening illness, but if you do, perhaps you’ll be inspired to use more energy helping fellow humans and less energy scouring Reddit looking for opportunities to make snide comments.
BluebellsMcGee OP t1_jbzwgo4 wrote
Reply to comment by sassergaf in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
I wish my team had presented this to me in advance, or at least something like it. I keep feeling blindsided by the "but wait there's more" aspect of my treatment.
BluebellsMcGee OP t1_jbzp5gf wrote
Reply to comment by newleaseonlife1 in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
Out of curiosity, what's your blood disorder? I have FVL and MTHFR, which is why I chose implant-based reconstruction rather than autologous reconstruction.
BluebellsMcGee OP t1_jbzdb6n wrote
Reply to comment by Ralwus in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
I chose to make it vertical because my family and friends will be referencing it on their mobile devices while app-switching to/from other vertically oriented apps.
The colors do not represent anything in particular.
I suspect if you, or someone you love, we’re going through cancer this would be a little easier to comprehend, but I understand that without that life experience and context, it’s difficult to read unfamiliar data in a colorful vertical gannt chart.
BluebellsMcGee OP t1_jbz2jl0 wrote
Reply to comment by [deleted] in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
Triple-positive breast cancer is a type of breast cancer. It has cancer cells that test positive for the following three features:
(1) estrogen receptors (2) progesterone receptors (3) a larger amount of human epidermal growth factor receptor-2 (HER2) protein
Triple positive breast cancer is very aggressive, but because we know three things helping it to grow, we have more weapons available to prohibit its growth.
BluebellsMcGee OP t1_jbz1jvl wrote
Reply to comment by Delouest in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
Yes -- people want me to reassure them that I'm "okay now," or "in remission," or "cured," or that the surgery "got it all out," or "had clear margins." When they ask like that, I know they want me to reassure them; they don't really want to hear the nitty gritty of how I'm doing, and what other treatments are still ahead of me.
BluebellsMcGee OP t1_jbyubk8 wrote
Reply to comment by McDuchess in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
I am so sorry for you and your sister. I know that metastatic breast cancer treatment has come a long way, but that still sucks.
BluebellsMcGee OP t1_jbyhuw7 wrote
Reply to comment by Zeal391 in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
It’s basically a vertical Gannt chart.
BluebellsMcGee OP t1_jbyhj60 wrote
Reply to comment by Raz0rking in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
I feel ok today. The Nerlynx side effects are my current challenge, but I’m hopeful my doctor can get me the recommended prescriptions tomorrow to help relieve some of that!
BluebellsMcGee OP t1_jbyh4o7 wrote
Reply to comment by gedmathteacher in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
I had Herceptin in my TCHP chemo cocktail. MegBundy most likely achieved pCR (pathologic complete response), which means her chemo completely killed her cancer.
When a triple positive patient gets pCR, she gets Herceptin infusions (or shots).
When a triple positive patient doesn’t achieve pCR, the prognosis isn’t as rosy, so they throw stronger drugs at it, including Kadcyla, Nerlynx, Zometa, and whatever other new treatments they can concoct (new treatments are coming out almost every year).
BluebellsMcGee OP t1_jby7kfs wrote
Reply to comment by DokeeOkee in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
I did post a link to the graphic on r/breastcancer, but that sub doesn't allow images to be directly posted on it. (BTW that sub is a wonderful resource for breast cancer patients, and has been one of my most frequently visited websites throughout!)
BluebellsMcGee OP t1_jbxxgvw wrote
Reply to comment by BousWakebo in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
This is such a hard question to answer honestly... I don't really know how I'm doing. Physically I feel okay. Mentally/emotionally, I'm scarred, but not unable to live my life. But there is always a chance that my cancer cells went roaming in my body and are taking root again, so I'll never really know if I'm ok.
BluebellsMcGee OP t1_jbxggvr wrote
Reply to comment by ChrisB911 in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
Thank you for the very kind words -- that's the impact I was hoping it would have. Before being diagnosed, I had no idea how long the breast cancer "journey" would be. As I approached each milestone, I thought "ahhh I'm finally in the home stretch!" and my cancer team would say "actually, there's more..." I'm grateful there are so many lines of treatment available for my type of cancer (the alternative would suck), but life truly will never be "back to normal" for me.
BluebellsMcGee OP t1_jbxcqrw wrote
Reply to Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
Made by hand in Canva, in an effort to help my friends and family visualize my overlapping treatments.
BluebellsMcGee OP t1_jd6kii2 wrote
Reply to comment by emmet80 in Cancer timeline: treatment for stage 3c triple positive breast cancer (all cancers are unique, this is my personal timeline; similar diagnoses will have a similar, but not identical, timeline) [OC] by BluebellsMcGee
Because I had FVL, there was an increased risk of an autologous fat transfer failing. I opted for silicone reconstruction.