• OC INFORMATION
• Tools:
  • Powerpoint
• Data sources:
  • Doctors notes, medical files.

I had posted this last week but it was removed because of "Rule 9".

This blew up when a lot of disabled and chronically ill people online said they wanted a copy after I shared it.

Thank you to the people on this sub who gave me corrections of spelling and other errors to make it cleaner.

I created this when I had to see different doctors so I would not have to explain myself each time. It's greatly helped me cut through a lot of small talk with all sorts of professionals over the years.

EDIT: I'm not sure if I'm allowed to post the template on the sub, I will if it won't get the post removed again or you can contact me. It's really easy to edit and the entire report is about eight pages.

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Imagine putting your private and medical information on Reddit together with your actual name and stuff, but it's visualized in Powerpoint so it's okay.

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LOL! I bet that would seem shocking.

I wrote a book in 2018 with all the same information and now give that story at keynotes around the world.

I bet it looks odd, but it's nothing that is not actually public for me, my doctors and my story.

Did you seriously just upload your medical life history on reddit? With your real name?

He kind of a public figure, gives talks about his health and life etc. Not really secret.

Nor is any of this particularly able to be used against him.

Heyy, good for you!

I feel like I should do this for me. lol I have way more medical problems and way fewer excuses ha

It's seriously in my book that is now nearly five years old. What I couldn't get over was how many people didn't have a way to communicate with their doctors / health teams.

This chart has saved me hundreds of hours in talking to professionals and I think it's important for people who might have chronic illnesses, mental health challenges or other larger histories that need to be communicated quickly.

I actually modified a version for a new dentist I'm seeing recently!

I can share the link to the template, but I'm a mod on another sub and dont' want to break another rule (e.g. I didn't read closely about Monday personal data)

It was amazingly therapeutic. It allowed me to see my life not as a bunch of trauma (it was) but that maybe I was a survivor.
Doctors really react quickly to this, and usually take me seriously very fast.

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Great graphic!

This is why a distributed ledger for personal healthcare records needs to exist and be run by an NGO

any healthcare provider should be able to commit given the individual has provided consent. Permissions and time boxed windows can provide secure access to providers as needed

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I have seen so many attempts to make it easier for people over the years, but they all fail. Reading a lot of the comments helps me understand there is just a lot of stigma people have over their health information / bodies and the repercussions that come from having that information sharable.

Do you think we will see something in the next 30 years? I keep thinking that the phone operating systems will make it a reality at some point. Seeing all my lab work on my phone in the health section blows my mind. I've had to manually manage all that for decades.

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As a European it sounds kinda weird to start drinking at 21

Rotator cuff surgery so good he felt 40 again

Yeah it's easier to buy a gun than have a beer here in the US.

Very proud of you for stopping drinking and smoking.

They are Hard life habits/routines to break. It’s amazing what changes happen in your life without alcohol! Right!?

It's so wild. My life before with drugs, booze, cigarettes and all sorts of associated behaviors doesn't even seem real.

I remember it, but almost as a third part participant.

I don't even understand how I got there or how I got out, it just all happened one day at a time.

I will admit that I have 0 clue who you are and still find it strange to provide your medicinal health information on Reddit. But looks like you are doing a good job at reducing the stigma - cheers!

This guy has had fewer surgeries than I had by age 21.

Yes. Very true.

I quit drinking almost 18 months ago. Best decision I ever made (so far) for myself. It truly ruins people inside and out.

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I imagine both happened at 40, it was just moved upwards due to lack of space

Looks like my post has been pulled down again.

It's really strange. This keeps happening.
As someone who has struggled with disabilities, who followed the rules and identifies as non-binary, it seems strange that my posts are targeted.

Well the mods just pulled it. It seems like when ever I post anything that deals with disability, mental illness or being gay it gets pulled. Very odd.

1968 babies unite!

This is great work. I’m glad to hear it has helped your doc visits go more smoothly. This would also really help caregivers like me when taking their loved ones to the doc. Food for thought: post this on r/dementia, r/caregivers, and r/Alzheimers

Thank you for your hard work on this

I think someone needs to create an app that PTs can choose to use to share info. I think the HIPPA protections providers have on our data makes it hard to make easily accessible.

For the graphic, I think it should be flipped and consider that people read top to bottom, left to right.

maybe age bars on both sides so information is closer together.

Scales for weight, scalpel or surgeon for surgical procedures. I thought you got stabbed several times.

Regardless, I think this is a cool way of displaying medical history

Thank you, the mods pulled it again. I think the mental health / chronic illness / LGBT stuff is too much for "data is beautiful" really makes me sad. I've had this happen over the years on this particular sub.

I got asked about an app. That's not really my thing. That said, the simple powerpoint template seems to help folks.

Unfortunately the mods pulled this off the sub again. Not sure which rule I broke this time, but when I mention mental health, chronic illness or LGBT, things disappear here.

If I find out, I'll let you know, I appreciate your feedback.

Sorry to hear that. If you want some advice, let me know. Best of luck.

Unfortunate, this is more attractive than what’s usually posted

yes, would love any advice. I can't figure out why anything I post gets targeted. Last time I posted something that was pulled in 2015 there wasn't the rule on "Personal data" so I didn't see that was new.

With the uptick in attacks against disabled, LGBT and the chronically ill, it makes me really paranoid around safety issues in subs where health information is suppressed.

I see so many people post their weightless journeys, phone call data and all sort of other things here, but these straight why guys usually have some sort of understanding of the sub that is missing from the rules on the side bar.

I got about 200 different doctors and nurses who sent me messages saying it was perfect for what they would want from patients.

I'm just confused about why the mods keep deleting anything I post.

If I had to guess, people are not comfortable seeing what appears to be your private medical history.

This will be oversimplified but in marketing and advertising we Create sample presentations for each target market we are trying to reach. If your research shows there are 3 top markets to go after, let’s say 60yo Diabetes patients, 40yo cancer patients, and Family Caregivers of 80yo parents with Dementia, then create a unique presentation for each target using datapoints specific to each market. If we can only create one sample, then select the group who is likely to use your product the most, aka the “heavy buyer.” Does that make sense?

Edit: thanks for the award, kind stranger!

Yup!

I guess I try to put a fake name on it next monday and see if the rules change again!

Ok. I’d also post it in friendly spaces like an lgbtq+ sub, a mental health sub… ie. don’t be married to this sub. Post in places where there is interest beyond raw data

it's easier to follow than a traditional medical chart.

you really simplified the parts of your life into significant epochs that make logical sense. Doctors like it because you did the first part of their job for them!

Puts it in perspective right? Glad you found it so therapeutic. Cathartic even, it seems like?

this could be a viable business opportunity to provide complex patients with a service to visualize their issues and medical history. Great for nonverbals... but really, anyone tired of going through the whole thing every time.

Could be a B2B service too at a hospital. Functional medicine might be interested in adopting something like this.

Very cool! I love this format , and the ease of quickly understanding a history.

Also ,wonderful work from homeless to homeowner. I know that was not easy. Good job! Please keep sharing your story, it gives others hope.

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I always forget that one. Homeless twice (once when my family was evicted) once when my partner died and coudnl't keep paying for stuff alone.

It seems like another life time. Owning a home seems like the big step, but to be honest, feeling safe, anywhere was a bigger one!

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I like this idea. My suggestion would be use small circles for the weight, or even a little chubby person to show over weight. Took me a while to understand that you went from 300lb to 180lb. Which congrats on that, by the way.

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im trying to figure out how he got rotator cuff and knee surgery while homeless?

obviously i dont know where OP lives but that seems crazy for a US resident.

I like the idea of communicating medical information efficiently, but the implementation gets a hard pass from me. It doesn’t help that it’s cool looking if it doesn’t provide any additional value.

The scales aren’t standardized, there are no guidelines for what should be included, the emojiis takes all the attention instead of the medical information, the colour gradient doesn’t add any new information, and everything is given equal attention regardless of the importance of the event. You’re also using personal information which is a giant no-no. Use a fictious persona.

Looks like he was a goddamn mess at age 44 but looks like some positive changes were made.

So far all the feedback from doctors and nurses has been really positive so it's good to hear your feedback.

I'm a public person the info is in my book from years ago, so I don't mind sharing real information!

Didn’t you already post this?

Yes! last week. It was removed because it was on the wrong day (See rule 9)

I’m not a doctor but my job entails a lot of communication through both text and visuals. So do what you want with my feedback!

It doesn’t matter that you’re comfortable sharing it. If you’re going to share it with others to introduce them to the concept in any kind of formal setting, you can’t use personal information. Not only is it highly unconvential, but it also draws the attantion away from your concept and towards yourself. I don’t think that’s what you want. You want the people to think «hey, this is a neat concept», not «f**k, this guy has had it rough».

The only way I could think of to incorporate your history into it is if you’re doing a brief and you start with your history/motivation, then present the concept with personas, and then circle back to how the concept would look for yourself. At that point the listeners would be familiar with you and the concept individually, and it’s easier to merge them without drawing the attention away from the concept. They will be reminded of your strong story and you show them how your concept can help explain it in an efficient and understandable way.

It is unlikely that you are being targeted. Reddit has a legion of ways to secretively remove or suppress posts that are applied haphazardly, as well as mods who will almost always remove posts once they hit r/all (if you don’t believe me, check out the redditminusmods subreddit). In this case, incompetence is more likely than malice. Looks like it is showing up fine now though

It would be through Medicaid/Medicare or the VA system.

if it was VA i think "US Military Service" would be somewhere on OP's timeline! haha.

but even Medicare ... vast majority of ligament surgery is often deemed 'elective'. like pancreas removal, sure, thats a life threatening condition. but rotator cuff surgery?

i can hardly get my insurance to pay for an MRI to see if i NEED rotator cuff surgery...

They have the years written underneath, o.p. should have been 45 during the rotator cuff surgery.

They weren't homeless then?

The last homeless mark is when o.p. was 25. Rotator cuff surgery happened when they were 45, and the following year they bought their first house.

wait so the homeless tag is only for the specific years it was labeled? i guess i misread that thinking it was 'starting' there and didnt 'end' until they show the first home label.

Not sure if it ended there, based on this chart, but maybe o.p. didn't find apartment living to be a significant enough life event to put down?

I actually meant Medicaid. The coverage with Medicaid is dependent on the state. In California you can potentially get the same coverage as a patient with an employed-sponsored plan.

Looks like these are looking up! Hopefully passion for data helped in this journey because this viz is looking nice!

Oh. I see, fair enough

Sheesh dude, you seemed to be doing better I guess

Inspiring for a struggling 26-year-old. Congrats on your successes

Life is really hard. If I can help let me know. My phone number is literally on my website. My spouse is 31 so I really know how hard it can be when you're below 35 lately. Seriously, you're not alone.

LOL! Right! I mean, I was in pretty much a hell until I turned 40. But the last 10 years have been easier and each day gets even nicer. I think realizing that I wasn't a bunch of trauma but an actual survivor helped. Just seeing what we go through in a chart really helps, me at least, feel better about tough days.

This sounds like what I do when I'm doing a keynote. I think to share the tool with a wider audience, I don't have that bandwidth. It's not a product or something I am selling, but something that I felt some people could use with their health care teams!

Man, what a fucking life you’ve lived. Not sure if you’re well travelled, but maybe worth visiting some of the world’s historic sites.

The collection of all info in one place is one part of the problem.

The other is that existing EMRs are receipts for insurance reimbursements, not true health documents. There's not going to be a standard way to code a previous abusive relationship.

A distributed ledger doesn't help with that, unfortunately the tail is wagging the dog and the centralized control lies with the insurance carriers rather than the providers. So the records fulfill their needs first and the patient's last.

I've seen most of the world. Seriously, I can't think of any place I haven't been that I would want to go. Life was super hard, but I always managed to travel.
The last 15 years nearly a million flight miles.

Pretty personal stuff to put out there.

My book actually has more details.

I downloaded the template. Can't wait to fill it in. THANKS!!

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You’ve seen some shit huh,

Glad that things are working out these days

Cool infographic

>There's not going to be a standard way to code a previous abusive relationship.

IDC codes get updated all the time.

Obviously EMRs are not the solution. They are adjacent technologies made for a different purpose

Nice now that i know your medical history i can finaly steal your identity

You could have done that in 2018 if you bought my book! But yeah, at least you're here now.

This is really cool, but this graphic is honestly hideous

Great graphic! I think that it’s really important that people know their own medical history, especially given how every single hospital seems to use their own EHR and transfer between two different systems can be next to impossible.

As a medical student/ex medical assistant, there’s a couple tweaks that I’d like to see:

First, I’d like more of a medical history. The surgical and procedural history is great, but there isn’t any medical history proper (i.e. diagnoses - what did they see on the echo? Did they ever figure out the cause of that idiopathic neuropathy?) Similarly, the procedures listed don’t have any indications associated with them. For instance, why was that echo/stress test ordered?

Second, a section for medications would be great too. (You may not be taking any medications after you stopped the panic/depression meds in 2012, but it would be convenient just to jot down “no medications or supplements” somewhere.) In the same vein, any known allergies would be good to list.

Either way, if I sat down in a room with you and you handed me this on a sheet of paper, the first thing I would think is “wow, this person’s incredibly invested in their own health.” That alone is worth a TON. Good luck with your health moving forward!

Medicaid would cover this. Very poor people get good healthcare in the US despite what you read on Reddit. People fall out of coverage when they start making money, but don’t opt in to paid healthcare.

yea i definitely dont have any experience with Medicaid. i just know my paid for plan tries to take a shit on you any time you come in with a soft tissue injury.

It's almost hard to believe. Like how can a human go through this much for so long

This reads like a Rimworld character sheet.

It seems like another human and life time ago, but honestly I don't know. People are pretty resilient.

AMAZING feedback.

The back up "data" as you would have it is tied to records in AirTable.

This was just a summary to get people on track with where I was.

I had no idea it would be so interesting, now I feel like I should just release the database that creates it.

Insight is the key. Good luck hope 2 c this post @ year 100

Ahh, gotcha - that makes sense to have more details stored somewhere else. From my incredibly inpatient centered viewpoint, I might leave out the dental work in order to squeeze in those diagnoses/medical history, but considering it’s meant primarily as a general health overview for dental as well as medical, I can see an argument for both. Thanks for sharing this infographic!

It’s a beautiful graph of all your life’s accumulated adversities.

As a mental health therapist I wish everyone would have this ready to go at their intake session 😹😍

My therapist in 2012 was my inspiration to do this.

Very inspiring stuff. Thank you for sharing, I can't imagine it was easy.

Two questions though. First, what does the "r" after some surgeries mean? Second, if you don't mind me asking, what prompted the L4-L5 fusion at 25? I'm a physical therapist and that is quite young for a fusion, so I'm curious.

Would be completely reasonable in Canada...

Hell of a comeback, and seems like it’s been a really nice last 10 years.

Get into AA for the drinking?

I actually did AA years before I quit drinking. Drinking went away when I stopped smoking. I use to drink to smoke. They were connected. Now I just have no desire.

Rough start, finishing great.

Next up: replace those bridges with some implants!

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Love that you shared this and happy things turned for you! (Might have to create one about me)

It’s therapeutic!!

How did you only age 8 years in a period of 9 years?

That makes sense. Congrats on the changes. No desire to drink at all in the last decade?

That’s really amazing!! And love how you’ve blossomed! You deserve all good things!!

Someone kick your ass at 25?

I was jumped coming out of a gay bar and e fed up in the hospital. Homophobia is ugly.

Depression seems to be a life-long thing. I was hoping my life would get easier from the years of child abuse and depression but i’m in my 30’s and lost my job, my apartment, and was admitted under 5150 last Christmas. Each depressive episode seems to get harder and harder,even with mental health care.

Message if you want to chat!

Kitchen knife for surgery? Temp icon for body weight? What is happening here??

It’s how my brain works. 🤷

Probably the best answer I could have received. I accept.

Definitely seeing data, not sure about “isbeautiful”

Rotator cuff and knee show 5yrs apart but same age Data corruption

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Fascinating...I don't ever want to see mine.

Age, name not same but I’m sure I know this guy

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Dude, send this to EPIC! Also, I rely appreciate highlighting significant psychosocial/behavioral stressors.

Quite the negative outlook here. No references of great vacations, strong personal accomplishments, meeting new incredible people, etc. All negative stuff, with the exception of marriage/home.

Man this dude can’t catch a break

This is incredible. I have a long complex health history and making something like this to give to new specialists when I meet them would be so helpful. It can be awfully distressing trying to catch them up to current day and somewhat impossible. Do you mind sharing your template? Feel free to PM me

I love this. How can I make one with my info?

"mother died" was a hope moment for me

Alright, sorry for the agression, i hope you understand the initial response.

I posted the template (powerpoint) in another thread. If you DM I'll send it to you.

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This is the greatest thing I’ve ever seen! As someone with chronic health issues, this is exactly what I need to give to doctors 😆 I hope you don’t mind but I’m stealing your idea to recreate lol

You’re a hero!

Pm and I’ll send you the ppt

bro, you're a real warrior. Hope life is better for you nowadays.

1000% Better for the last decade

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If that’s the case, I feel bad for his Extractuib that made him feel 10 years older!

It’s great to hear that!

Oh man, as a designer with chronic illness (cystic fibrosis) this makes me want to make one for myself! It would certainly be of great use to the doctors that assess me to know my history of bacteria infections and lung capacity and meds I've taken and stuff..... This is really neat!!

So I'm not the only chronically ill person who was inspired by this! Neat to know hahaha! If I ever make one for myself and post it somewhere I'll tag you in it :)

Yes it is. Don’t see too many L4/L5 fusions, curious

A million miles in 15 years? Our home planet thanks you! /s

(Clicked down to add a comment saying "glad things are working out for you mate", but then saw that... a little excessive don't you think?)

Wow to both your life story and this amazing visual of it! I work in health services research and this by far one of the best, most holistic approaches to a life and health history I’ve seen. Very impressive and happy to see how well you’re doing :)

Or he purchased his first home at 46.

My first thought too.

Thank you. A lot of people were not happy with it, but it really was for me, to see my life. Most of my providers have enjoyed it!

Not sure how the calculate "flight miles" I just know that I get to board early the last few years because of my "million mile flyer status".

That said, I'm really fortunate to have been everywhere I have ever dreamed of going.

Although, I must admit, I really don't like to travel any more, it's really hard on my body (time zone changes).

Yeah, I'll never understand that one. I was young and my leg started going numb, I just trusted what they told me needed to be done.

Good luck, it will be a great review to see how much of a survivor you are!

Ce graphique est incroyable. Il t'as fallu un sacré courage pour tenir.

Je te souhaite un bon avenir.

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Sending you a pm. Left a comment earlier you replied to but lost track of it

I like (maybe don't like) the surgery symbol. Any symbol options more appropriate than a large kitchen knife?

Great chart! What software did you use?

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Yeah. A surgical knife (or butter knife) without black handle would be more suitable. Too bad there is no such emoji.

I think a heart would work though🫀

Trajectory is everything.

Congratulations on giving up smoking and drinking, your marriage to someone kind (I hope) and your first home! The good things we do always seem to invite more good. Well done in working to turn things around for the better. Wishing you kindness in your life, from you and for you, and serenity.

Sorry if I missed the comment but did you create this piecemeal or is there an app? I’m a healthcare provider and this a great way to visualize a person’s journey. Thanks for sharing

Can you DM template to me? Thanks!

App, sorta. The data is kept in Airtable for my doctors and other labs etc.
This is a power point template to make it easy to see it all.